Benson and Claire were born with a rare genetic disease which effects their liver and causes their body to destroy itself. Claire, the youngest sibling, has had kidney failure since she was 2 months old and been on almost constant {up to 15 hrs a day} dialysis since she was 3 months old. Their parents started a blog chronicling their journey and raising money for the transplants BOTH of their children will eventually need. Claire has been on the waiting list for a combined kidney/liver transplant and I have been following her story:
Give Hope to Benson and Claire
It’s only been a few weeks since I first found their website, but I was deeply touched by the strength of these parents and amazing children impressed me to the point I felt I had to do something, anything to make their life a little easier.
I try to keep up with their story but since I had family coming to town, I missed a few days of blogging. Imagine my surprise when I visited their site this weekend and found out Claire has had major surgery ~ a double transplant (kidney & liver). She’s still recovering, but doing quite well. Talk about a Christmas Miracle. God Bless this family, I wish them Peace and Joy and a wonderful Christmas with both of their children.
Now, here’s the part where I tell you what we can do to help this amazing family. I was shocked to hear an organ transplant can cost over $500,000 {and this family needs two of them}!! Thankfully, they have friends who organize auctions raising money for their cause – I’ll start announcing each of these auctions on KSW from now on so we can contribute and score some awesome goodies for ourselves {The next auction will be held from 4 -15 Jan, if you would like to donate an item to be auctioned, contact Shannon from Shannon Makes Stuff at stakeresensations@gmail.com} but you can also make a monetary donation by visiting Benson & Claire’s online donation site.
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